Tag Archives: Struggles

Spread the word!

Well school has started and I have been super busy but tonight I am taking the time to share a special post with you.  My last post was about my thoughts on the ALS challenge.  This is a follow up to that post.  Jennifer is a very intelligent and hard-working former student of mine.  Recently she was piked to do the ice bucket challenge but she suffers from lupus.  Instead of declining she hose the opportunity to raise awareness of her own.  I applaud her effort and asked her permission to share her post here.  I knew that she struggled but I was unaware of all that she has had to endure.  I think what she is doing is to be commended and it reminds me that there are many people who need and want our support.  So if you are one of those that have criticized the ALS challenge, do what Jennifer did and find a cause that you can support and raise awareness for it.  We can never have too much awareness for worthy causes.

From Jennifer

“First, I have recently been nominated to do the ALS ice bucket challenge and for medical reasons I must decline. Also, when I donate to a charity I don’t do it for gratification or to get noticed so I won’t be posting whether or not I am donating.

Second, I am raising awareness for a cause that is near and dear to my heart. As many of you know, I was diagnosed with Systemic Lupus in 2008. Since my diagnosis, my life has spiraled out of control at points. Not a single part of my body has been unaffected by Lupus. I have been diagnosed with Stage 4 lupus nephritis, Raynaud’s phenomenon, arthritis, pleurisy, pneumonia, bronchitis, chronic inflammation, silent migraines, and the list goes on. How does lupus affect me? I wake up at 2:30 / 3:00 every morning not by choice. Many of my medications cause sleeplessness. I toss and turn until about 5:30. I struggle to get out of bed. My body is very contorted at this time because of the arthritis. Most times I cannot brush my own hair or teeth. I start to take a shower, but I can only use hot water. If the water is even luke warm, my fingers, toes, and sometimes nose turn blue. Cold water also causes my lungs to hurt. I continue getting dressed when I want to do is go back to sleep. I then make breakfast which often makes me nauseated because I just took all my medications. By 12:00 pm I need to nap because I am too exhausted. I usually don’t wake up until 3:00 pm. I make lunch / dinner and I am asleep by 7:00. This is a typical day when I don’t work. This doesn’t include the back pain from my kidneys. I need to drink water but when I drink water my lungs fill up with liquid. This also doesn’t include the constant migraines or the auras that cause me to go blind.

It is estimated over 5 million people live with this horrible disease everyday. I urge you to go and read more about it at www.lupus.org. There is also a link to donate.”